룩셈부르크, 국제 건강데이터 스페이스 이니셔티브(IHDSI) 공식 출범
7월 21일, 주한 룩셈부르크 대사관저에서 ‘국제 건강데이터 스페이스 이니셔티브(International Health Data Space Initiative, IHDSI)’의 공식 출범식을 개최했다. 이날 룩셈부르크 보건연구원(Luxembourg Institute of Health), 한국 국립암센터, 네이버클라우드, 오케스트로, 싸이퍼롬이 참여해 국가별 데이터 주권을 존중하면서 기존 단절된 의료AI 데이터 환경을 극복하는 ‘국제 건강데이터 스페이스 이니셔티브(International Health Data Space Initiative, IHDSI)’의 출범을 알리는 공동 선언문을 발표했다. IHDSI는 정밀의료 및 복합 질환, 특히 암 분야의 연구 혁신을 목표로 국가 간 법적 규제를 준수하면서 글로벌 헬스 데이터 인프라를 구축하고자 하는 국제 협력사업으로, 먼저 방광암 코호트를 활용한 국제 공동연구를 본격화할 예정이며, AI 기반의 분석 기술과 개인정보 보호 체계를 접목함으로써 글로벌 임상연구 인프라의 혁신적인 모델을 제시하는 것을 목표로 한다.
A consortium of leading research and technology institutions from Luxembourg, the United States of America and South Korea have announced this Tuesday 22 July the launch of the International Health Data Space Initiative (IHDSI) that will accelerate precision medicine and cancer research.
This space initiative consists of a federated, secure, and privacy-compliant infrastructure designed to enable health data integration, joint clinical research, and translational innovation. An initial focus is announced on precision medicine in cancer and other complex diseases.
Overcoming traditional data silos
This initiative is led by the Luxembourg Institute of Health and the National Cancer Center Korea, alongside strategic technology partners: the IT infrastructure and platform services provider NAVER Cloud Corporation, leading cloud software company in South Korea Okestro Co., Ltd., and Cipherome, Inc., which provide tools that accelerate the work of researchers in precision medicine and therapeutic development.
IHDSI seeks to overcome traditional data silos by enabling sovereign and legally compliant access to health data across international jurisdictions, aligning with European Health Data Space (EHDS) regulations and protocols like GAIA-X.
A long-term strategic alliance
The International Health Data Space Initiative (IHDSI) sets forth a transformative vision for global health by aiming to establish a long-term strategic alliance centered on data-driven and patient-centric healthcare innovation.
Initial research activities will concentrate on two major areas led by the LIH and the NCCK. First, a prospective Bladder cancer cohort will be established to collect clinical and multi-omics data, aimed at identifying biomarkers and developing precision oncology strategies.
This strategic initiative will fundamentally reshape how health data is accessed and used for research. Dr. Ulf Nehrbass, Luxembourg Institute of Health
Second, a Parkinson’s disease cohort will be used to conduct a feasibility study, validating the performance and utility of the federated data connector within real-world clinical research settings.
“We are proud to co-lead this strategic initiative that will fundamentally reshape how health data is accessed and used for research,” explains Dr. Ulf Nehrbass, CEO of the Luxembourg Institute of Health. “IHDSI exemplifies our shared commitment to overcoming fragmentation and enabling global collaboration to accelerate precision medicine, particularly in cancer treatment”.
Source: https://luxembourgtradeandinvest.com/news/luxembourg-hosts-an-international-health-data-space-initiative
